Palliative Adult Network Guidelines (Fourth Edition)

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Top Tips Communication skills for GPs (330 KB PDF) - Communication skills are crucial for effective care planning and avoiding complaints at the end of life Legislation and knowledge relating to end of life processesis often changing. The following resources provide ongoing forums and updates in which healthcare professionals may keep abreast of current knowledge. The fourth edition has been updated by an authorship team of over 80 specialists in Palliative care from nine regions across the UK. PANG is a not for profit collaboration aimed at sharing key information to help support patients and families. The Kindle edition allows the Guidelines to be accessed and navigated on a wide range of handheld devices using the search and find tools that come with the free Kindle app. Since the first edition of PANG in 2002 more than 300,000 printed versions have been distributed across the UK and beyond. The RCN and RCGP End of Life Care Patient Charter (330 KB PDF) lists the key points GPs should communicate to their patients The third edition of the Oxford Handbook of Palliative Care is the essential companion for all of those working with adults, children, and families with palliative care needs, in both hospital and community settings.

Good Life, Good Death, Good GriefEncouraging open discussions about death and planning ahead in Scotland Training resources to help fulfil CPD and revalidation requirements. Further study and learning modules for practitioners It’s good practice to speak with the other professionals involved in the person’s care regularly. Every local area has a system that allows professionals to share information for each individual receiving end of life care. This includes a summary care record that you can access securely online or notes and care plans in the home, if the person consents to having their information shared in this way. Told through a series of beautifully crafted stories taken from nearly four decades of clinical practice, her book answers the most intimate questions about the process of dying with touching honesty and humanity. She makes a compelling case for the therapeutic power of approaching death not with trepidation but with openness, clarity and understanding. The following resources are appropriate to share with informal carers and those close to a patient who is dying. These resources aim to support individuals affected by the end of life process happening to those close to them.

Journal articles

Paediatric Palliative Medicine FormularyDosing information to support prescribing in paediatric palliative care pro-active quality care, and allows healthcare professionals to focus on better meeting patients’ needs. It has been developed in partnership with Marie Curieand the Clinical Innovation and Research Centre. PHE Fingertipscomparative information presented for each Government Office Region, Strategic Clinical Network, clinical commissioning group and upper and lower tier

As end of life care tends to involve a lot of healthcare professionals, good communication is essential. It ensures that everyone is aware of the patient’s wishes and preferences, and can act accordingly. For resources related to end of life care and COVID-19, visit the dedicated section on our COVID-19 Resource Hub. And yet, she argues, in a hospice there is more of what matters in life – more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion – than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. What to expect when someone important to you is dying A guide for carers, families and friends of dying people Never before has aging been such an important topic. The systems that we have put in place to manage our mortality are manifestly failing; but, as Gawande reveals, it doesn’t have to be this way. The ultimate goal, after all, is not a good death, but a good life – all the way to the very end.Following the phasing out of the Liverpool Care Pathway (LCP) in 2014, new guidance for approaching a dying person was issued by the Leadership Alliance for the Care of Dying People. The current guidelines make the dying person the focus of care in the What are the things that make life joyful? What and who do they value the most? What makes life worth living for them?” Developed in partnership with the Clinical Innovation and Research Centre, the guidance and resources within the End of Life and Palliative Care toolkit reflect current guidelines, and provide a toolkit that general practitioners may refer to whenworking of high quality care. The process continues after death with support for those left behind as well as reflective practice and audit for the practice team.

This groundwork is essential to making sure someone is able to make meaningful choices, and prepare as well as they can for the latter years and end of their life. Animation explainer on VBA, Very Brief Advice framework for GP staff - A compassionate bereavement response (Cruse Bereavement Support YouTube channel) These are just four of the book’s thirty-odd stories of normal humans, dying normal human deaths. They show how the dying embrace living not because they are unusual or brave, but because that’s what humans do. By turns touching, tragic, at times funny and always wise, they offer us illumination, models for action, and hope. Read this book and you’ll be better prepared for life as well as death. A Different Ending end of life care review published by the Care Quality Commission examining inequalities in care, particularly with certain groups At the age of thirty-six, on the verge of completing a decade’s training as a neurosurgeon, Paul Kalanithi was diagnosed with inoperable lung cancer. One day he was a doctor treating the dying, the next he was a patient struggling to live.As a patient nears the end of life, a holistic approach is recommended. This approach involves early identification of those likely to be in the last few months of life, discussion of end of life issues with patients and those close to them and provision Rachel’s training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing – even the best palliative care – can sugar-coat the pain of losing someone you love. The End of Life and Palliative Care Toolkit provides a collection of tools, knowledge, and current guidance for healthcare professionals to support patients nearing the end of life to live well until they die. The resources include information for patients Basic symptom control in paediatric palliative careA key clinical tool for treating a wide range of symptoms experienced Paul Kalanithi died while working on this profoundly moving book, yet his words live on as a guide to us all. When Breath Becomes Air is a life-affirming reflection on facing our mortality and on the relationship between doctor and patient, from a gifted writer who became both.

Clinicians and practices may carry out their own audits as part of the GSF meetings and to fulfil their Care Quality Commission obligations. Online tools are also available to help meet this requirement. Looking for support after the loss of someone close?: a patient poster for GP waiting rooms across the UK, telling people how best to speak to their GP about grief they may be feeling - Scotland (523 KB, PDF)The PANG Guidelines have been available for palliative care professionals since 2002. Now in the fourth edition the goal of the guidelines remains the same, – to provide evidence based, practical advice to those looking after patients at the end of life. The following resources may be used to determine if a patient is nearing the end of life, and give recommendations of how treatment should be tailored to their specific requirements. As well as reflective practice within local palliative care meetings, such as a practice Gold Standards Framework (GSF)meeting, clinicians are also able to access study days, online learning modules and post-graduate qualifications. More Care, Less Pathway Independent review recommending the phasing-out of the Liverpool Care Pathway Care Quality Commission end of life care myth busterHow the CQC will look at end of life care and the role of the GP practice during their inspections